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Connor was born on May 3, 2013, a happy healthy bundle of joy and the perfect addition to our family. He instantly blessed the lives of everyone around him. He adored his big brother Jake who was 8 yrs. old at the time and his dogs Luca and Chewy. Connor was thriving in every way … Read more Connor’s Story
About Batten Disease
Batten Disease, otherwise known as neuronal ceroid lipofuscinosis (NCL), is an umbrella term for 14 different types of lysosomal storage disorders. It’s a rare and fatal neurodegenerative disease where the process of removing waste from the cells is disrupted which results in the death of individual cells but on a massive scale. Once individual cells … Read more About Batten Disease