The Gift of Music


This morning our family was given the gift of music by Nicole Christensen at our home through Corwyn’s Cause. She sang several of Connor’s favorite songs including “Somewhere Over the Rainbow”, “I Can Only Imagine”, “A Million Dreams”, and “Silent Night”. Since Connor is blind, music has become the most important part of his world. It’s the one thing he can always enjoy, no matter how he’s feeling. Thank you Nicole for bringing kindness and joy to Connor and our family with your beautiful voice. Thank you Megan and Corwyn’s Cause for shining light on all of us and making such special things like this possible! We are so blessed and grateful for everything you do for our family!

Corwyn’s Cause is an amazing, local non-profit that provides uplifting support to families like ours, with medically fragile or terminally ill children. They will be hosting their 2nd gala tomorrow night to raise money for their cause. Here is a news article about Corwyn’s Cause that contains a link to their Facebook page:



Connor had an amazing day at PT yesterday! It’s by far the best day he’s had there in a few months. A lot of times, he’s sleepy at PT but he was wide awake and ready to work hard. While his therapist was supporting him standing in a knee-bent position with his new AFOs, he stood all the way up over and over again. He was so proud of himself! Then, he got so excited that he started jumping in her arms and making happy sounds! Connor is such an inspiration to everyone who is around him. No matter how frustrated he gets, and that has been happening a lot more often lately, he never gives up! Connor is a warrior!!!